Decision Aids
https://www.decisionbox.ulaval.ca/en/)
Developed by researchers at Université Laval, the Decision Boxes provide information to help in making health decisions, and are intended for individuals, their friends and family, as well as health professionals. Each one sets out the available options and allows you to weigh the pros and cons of each, and to reflect on what’s important to the person concerned.*
All about me
https://alzheimer.ca/en/Home/Living-with-dementia/I-have-dementia/All-about-me
This workbook helps care partners to provide important information about the person with dementia in terms of their occupational background, families and friends, interests and hobbies and current abilities. It can be downloaded or a copy obtained from your local Alzheimer Society.
By Us For Us Guide
https://the-ria.ca/wp-content/uploads/2018/11/BUFU-Guide-Before-Early-Diagnosis_AODA.pdf
This series of booklets are prepared by people living with dementia and care partners and provide useful guidance on different aspects of the dementia from a lived experience perspective.
Memory Clinics
http://mintmemory.ca
This is the website describing the primary care, inter-professional memory clinics that exist in Ontario.
Other Websites:
https://alzheimer.ca/en/Home/We-can-help/Resources/For-health-care-professionals/first-link
https://www.mcmasteroptimalaging.org/full-article/es/transitional-care-programs-improve-healthcare-services-older-adults-living-2969
COVID-19, stigma and the scandalous neglect of people living with dementia
https://theconversation.com/covid-19-stigma-and-the-scandalous-neglect-of-people-living-with-dementia-140817
Other Podcasts
I shouldn't have had to push and fight': health care experiences of persons with dementia and their caregivers in primary care
JC Prorok, M Hussain, S Horgan, DP Seitz - Aging & Mental Health, 2017 - Taylor & Francis
Jeanette C. Prorok, Maria Hussain, Salinda Horgan & Dallas P. Seitz (2017) ‘I shouldn't have had to push and fight’: health care experiences of persons with dementia and their caregivers in primary care, Aging & Mental Health, 21:8, 797-804, DOI: 10.1080/13607863.2016.1159280
Health care experiences of people with dementia and their caregivers: a meta-ethnographic analysis of qualitative studies
Jeanette C. Prorok, Salinda Horgan and Dallas P. Seitz
CMAJ October 01, 2013 185 (14) E669-E680; DOI: https://doi.org/10.1503/cmaj.121795
Major goals included :runderstanding and information, identifying the problem, role transitions following diagnosis and living with change.
Reimagining Dementia: A Creative Coalition for Justice is an international group of dementia activists and allies – health professionals people living with dementia (young and old); carers/care partners; family and community members; advocates, artists, academics, policy makers and others - who share a diverse and humanizing vision of care and support that promotes inclusion, relationality, creativity, joy and the possibility of growth for everyone living with, and impacted by, dementia. Click HERE for more.
https://www.decisionbox.ulaval.ca/en/)
Developed by researchers at Université Laval, the Decision Boxes provide information to help in making health decisions, and are intended for individuals, their friends and family, as well as health professionals. Each one sets out the available options and allows you to weigh the pros and cons of each, and to reflect on what’s important to the person concerned.*
All about me
https://alzheimer.ca/en/Home/Living-with-dementia/I-have-dementia/All-about-me
This workbook helps care partners to provide important information about the person with dementia in terms of their occupational background, families and friends, interests and hobbies and current abilities. It can be downloaded or a copy obtained from your local Alzheimer Society.
By Us For Us Guide
https://the-ria.ca/wp-content/uploads/2018/11/BUFU-Guide-Before-Early-Diagnosis_AODA.pdf
This series of booklets are prepared by people living with dementia and care partners and provide useful guidance on different aspects of the dementia from a lived experience perspective.
Memory Clinics
http://mintmemory.ca
This is the website describing the primary care, inter-professional memory clinics that exist in Ontario.
Other Websites:
https://alzheimer.ca/en/Home/We-can-help/Resources/For-health-care-professionals/first-link
https://www.mcmasteroptimalaging.org/full-article/es/transitional-care-programs-improve-healthcare-services-older-adults-living-2969
COVID-19, stigma and the scandalous neglect of people living with dementia
https://theconversation.com/covid-19-stigma-and-the-scandalous-neglect-of-people-living-with-dementia-140817
Other Podcasts
- Care of community-dwelling older adults with dementia and their caregivers
- People with #dementia and their caregivers can benefit from #primarycare interventions. In this #CMAJpodcast, Dr. Dallas Seitz explains the latest evidence on community-based approaches https://twitter.com/dementiadialog/status/1290820085234446336?s=20
I shouldn't have had to push and fight': health care experiences of persons with dementia and their caregivers in primary care
JC Prorok, M Hussain, S Horgan, DP Seitz - Aging & Mental Health, 2017 - Taylor & Francis
Jeanette C. Prorok, Maria Hussain, Salinda Horgan & Dallas P. Seitz (2017) ‘I shouldn't have had to push and fight’: health care experiences of persons with dementia and their caregivers in primary care, Aging & Mental Health, 21:8, 797-804, DOI: 10.1080/13607863.2016.1159280
Health care experiences of people with dementia and their caregivers: a meta-ethnographic analysis of qualitative studies
Jeanette C. Prorok, Salinda Horgan and Dallas P. Seitz
CMAJ October 01, 2013 185 (14) E669-E680; DOI: https://doi.org/10.1503/cmaj.121795
Major goals included :runderstanding and information, identifying the problem, role transitions following diagnosis and living with change.
Reimagining Dementia: A Creative Coalition for Justice is an international group of dementia activists and allies – health professionals people living with dementia (young and old); carers/care partners; family and community members; advocates, artists, academics, policy makers and others - who share a diverse and humanizing vision of care and support that promotes inclusion, relationality, creativity, joy and the possibility of growth for everyone living with, and impacted by, dementia. Click HERE for more.
