Mapping the Dementia Journey

Mapping the Dementia Journey Series


Our podcasts enable people with dementia and their care/life partners to share experiences and thus enable their peer listeners to understand and gain insight into their own experience and strengthen their adaptive skills. Care providers understand this lived experience more fully and the public becomes more aware of what it means to live well with dementia. Each podcast is about 20 minutes in length, and new podcasts are added periodically.

The first podcast series features conversations between David Harvey, people with lived experience, an educator, and a researcher about what it means to change and adapt to living with dementia. The second is on "The System Journey" and features conversations with people living with dementia, care partners and clinicians.

Since the release of our podcasts, we have received some positive feedback. Here are a few quotes from some of or listeners.

"They were very well done. Honest. Heart breaking but hopeful. They hit home with me.
We as a family are trying to learn more about how to deal with the personal ways this effects you and how to help the person living with the dementia to have good days. The dialogues were very true to what we are going through. I have already sent the link to all family members. My family recently all took the workshop on the dementia journey, another great piece of information."

Another listener wrote:

"I have been listening to the podcasts today and I wanted to say how amazing they are! David did a wonderful job asking important questions and he also did a great job making the interviewee comfortable to share such personal information. The tips that the interviewee’s shared and their personal stories are going to be so helpful for people who are in similar situations as them."

More information about Mapping the Dementia Journey can be found on our 'About' page.

 

EPISODES

Episode 1

Episode 1 of the Changing and Adapting series features an interview with Guy Chadsey whose spouse Alison has dementia. Guy talks about some of the early indications of Alison’s condition and his struggle to live positively. ...

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Episode 2

Roxanne Varey has dementia and has become an advocate for creating more opportunities for people with dementia in the workplace. Roxanne has written poetry to help her understand and express some of her inner experience. After struggling ...

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Episode 3

Louise Milligan’s husband Gord was diagnosed with dementia while still teaching and raising two daughters. Louise speaks eloquently about the challenges their family faced and how she was able to use community resources to help. She ...

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Episode 4

Susan Bithrey and her husband Reg were looking forward to the perfect retirement until life interrupted. Susan describes how she reframed her experience and found ways to affirm her husband’s strengths, even as they diminished. In the ...

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Episode 5

Too often people can drift away, but Penny Stager has not. As a member of a large extended family, Penny has helped the family out as they supported their mother and mother-in-law and now Penny is doing what she can to support her brother-in-law, ...

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Episode 6

This episode involves a panel of 4 people talking about the importance of “Pumping Up the Volume” so that people with lived experience will have their voices heard. Panelists include advocates for people with dementia and care partners, ...

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Episode 7

Ron Posno is a retired educator living with mild cognitive impairment. He shares with us some of his experiences and talks about coming to terms with his condition and continuing to live a full life with many great examples and tips. Ron became aware ...

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